Las Vegas on May 15 joins 22 cities across the country in putting on a fundraiser to fight Angelman Syndrome.
Southern Nevada’s contribution to this national cause started in 2007 with 144 people and grew in its second year to include 176 participants, raising $12,000. Yet, thanks to the tanking economy, only 50 people took part last year. Despite the depressing numbers, the charity still managed to raise $6,814 in 2009 and organizers are hoping 2010’s walk will breathe new life into the event.
Angelman Syndrome is a neuro-genetic disorder affects one out of every 15,000 children. Similar to autism, it is usually diagnosed between the ages of 2 and 5, and causes developmental delay, seizures and severe difficulty with speech, inappropriate laughter and problems with walking and balance. Actor Colin Farrell’s son, James, suffers from the condition.
The fourth annual Las Vegas Angelman Syndrome Foundation Walk-a-thon gets under way at 8 a.m. in Lorenzi Park with on-site registration, followed by a single mile and 5K walk at 9 a.m. angelmansyndromeofnevada.com, angelman.org/walk.